Patient Resources

Patient resources

Here are just some of the charity and support groups available for families with hereditary cancer syndromes and cancer diagnoses in the UK. You can also contact your local Clinical Genetics service if you have any questions or concerns.

Please note, the CGG is not responsible for any content published on these external sites. Any queries or concerns should be raised with the creators of the specific pages.

Please contact if you would like to let us know about any other groups or organisations providing support to patients with hereditary predisposition to cancer. 

Hereditary Bowel Cancer

Dietary Guidance in Lynch Syndrome

Our diet can have a significant impact on our health - including our cancer risk. 

In patients with Lynch Syndrome, there is evidence demonstrating the beneficial effects of resistant starch, which can be found in a host of foods, such as green-tipped bananas. 

Further information and tips for healthy eating are available from Cancer Research UK , The World Cancer Research Fund and the British Nutrition Foundation

Hereditary Breast and Ovarian Cancer

Li Fraumeni Syndrome and heritable TP53-related cancer syndromes

PTEN Hamartoma Tumour Syndrome

Endocrine Neoplasia


Von Hippel Lindau Syndrome

Ataxia Telangiectasia

Fanconi Anaemia

General Resources